As many of you know, James and I are expecting #4. So far it has been an easy pregnancy, nothing to really complain about. Two weeks ago our world was turned upside down. Something abnormal in my blood results required us to go in for a high resolution ultrasound. The doctor then gave us the news that no parent ever expects to hear, our baby has Trisomy 13. The doctor actually apologized having to give us this news and also a little surprised himself with us already having 3 healthy kiddos. Trisomy 13 is a rare chromosomal abnormality that affects 1 in 16,000 babies and is caused by a completely random mutation at conception and is not inherited. You never expect to hear that you have become the rarity. He explained that we needed to have an amniocentesis to confirm, but we refused, not wanting to put the baby at any more risk. In all of recent ultrasounds we have found out that we are having a little girl. We have decided to name her Addison Grace. So you're probably wondering exactly what this means. Trisomy 13 is a condition that is labeled "incompatible with life". Basically the doctor told us that if Addison makes it to term, we will not be taking her home, she will not survive long after birth. The doctor as us if terminating was an option and we said absolutely not and we will let God decide when to take Addison. James and I want all of you to know that the last two weeks have been insanely hard. We've had our good days and our very bad days. Somedays it really hits me that I may never bring my baby girl home, but we have 3 blessings that keep us going. While we continue to pray everyday for Addison and for a miracle, we both are at peace with whatever God's will is with our baby girl. Although this is random and rare, God's is drawing us closer to Him and we know that this is part of His plan for our lives. We appreciate all the prayers that we have been receiving and we ask that you all continue to pray for our family and little Addison. I am encouraged everytime I see her on the ultrasound, she's a feisty one. They're always having to chase her down. She is measuring quite well too for a T13 baby and her heart rate is good. As I have been reading a few stories of people in our situation, I feel that it is necessary to say:
Assume you know how we're feeling or doing
Try to take this on as your situation
Call us with condolences, Addison is still moving and kicking. If you would like to express something, email is fine.
Pray for us
Ask any questions you like, please don't walk on eggshells around us. We are ok and resting in God's peace
Phil. 4: 6-7
Thank you so much for your prayers and thoughts. We will continue to update everyone as we go through this process.
Love, James and Erica Frisk